Marcel will get his 3rd SGN-35 treatment this comming monday (june 7th). all of the Hodgkins symptoms seem to have vanished. no more night sweats, severe pain in his chest, itching. we can still feel the tumors that are close to the skin, but they arent bothering him the way the used to. before he started this treatment he was between 10-15 oxycotin pills a day. he hasnt touched the pills for about 3 weeks now.
as far as side effects, they seem to be minimal. he had some pain in his shoulders and knees a few weeks ago, but they have dissapeard. for about a week a new side effect has popped up. when Marcel lifts his legs, his thighs are very sore. he notived this first when dressing one morning as he was getting dressed. he said its liveable...and only bothers him when hes getting dressed, undressed or putting his shoes and socks on. hopefully it will fade as well.
for his next treatment he will catch the train home (i'll be working and he doesnt want me to take more days off) his mother is visiting, and shes never been on a train. plus the last time he recieved the treatment, driving home he said he felt confused and thought he was gonna get in a accident. he didnt say anything to his mother because she doesnt know how to drive, and he didnt want to make her nervouse, but he was scared. weird thing is....he's had tons of chemo over the past years (some chemos were even 3 day infusions), and never had chemo brain. its odd that a bag that only takes 30 minutes to infuse would finally give it to him.
i hope everyone out there who is recieving treatment for any type of cancer will be healed!
also if anyone else is on SGN-35 please contact me. i dont know anyone else who i can talk to about this treatment.
wishing the best to everyone!
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10 comments:
good news angie. And inshallah his treatment will continue being great :)
All my prayers are for Marcel quick recovery inshAllah :)
thank you wafa'!
Hey my name is Char my little brother is currently on this trial he is getting his second dose today. . . My email address is sharlykay143@yahoo.com please email me! I woud love to know how your husband is doing. I have been following your story for a little bit now. Thanks! Sending prayers of cure!
Angie, I read your blog and my prayers go out to you and your husband and I hear great things about SGN also. I have had amost exactly the same treatments as your husband and it looks like some kind of trial is next and they are talking about SGN35 - I would love to chat over email and find out where you are having the trial? We live in Los Angeles and are being treated at City of Hope - also do you use Facebook at all?? we have a refractory site for Hodgkins lymphoma which u should be able to find if you do a search - my email us beverleyself@hotmail.com and I would love to hear from you and find out how you are doing. all my prayers are with you. bev
Hi Angie... I don't even remember how I found your blog, but I had your page bookmarked for a couple of months now and now I'm beginning to think that this may be fate or something like it... I'm basically in the same or similar boat with you guys... I am on the SGN-35 trial... I would like to talk to you about the treatment... I have some things I don't understand that no doctor can really answer... If you are willing to talk to me I would be grateful... Don't really know how to though... If you read this please post back so that I may give you my contact info... :)
I hope that your husband is well soon :)
Nik
Hi! I found your site doing a search for SGN-35. My friend, Michelle, has been fighting Hodgkin's for almost 8 long years now, and this drug seems to be having a very positive effect on her. If you'd like to contact her, you can through her website at www.joeypouch.com. Tell her Becky sent you. :) GOOD LUCK!!
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Hi Angie,
My heart goes out to you and your husband......My father is currently considering an SGN-35 trial for his non-hodgkins...Your last post was some months ago, I pray things are well..could you relay any updates if posible?
toddlisk@hotmail.com is my email address..Thanks so much.
i'm so sorry i havent kept up with my husbands blog. anyone can email at anader@stanfordmed dot org
i would love to talk to anyone who is on this trial. my husband is still in remmision :)
Hi Angie,
I am glad to hear that your husband is still doing well on the drug. I just had my first infusion of SGN-35 on Thursday and am very hopeful for a positive outcome. I am receiving it outside of a clinical trial on a compassionate use basis. I'd love to hear more about his experience has been if he or you would like to connect. I also keep a blog at: http://eyespeeledalways.blogspot.com
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